Late Stage Alzheimer's Program

In the last Alzheimer’s disease stage, your loved one may lose their ability to effectively carry on a conversation, respond to their environment, and eventually lose their ability to control their movement. Although your loved one is likely to be able to say phrases or words, their communication abilities will be significantly hampered, and you may notice significant personality changes. In the late stage of Alzheimer’s, your loved one may:

  • Lose awareness of their surroundings as well as of recent experiences.
  • Require around-the-clock care and assistance taking care of themselves and with daily activities.
  • Experience increased difficulty communicating
  • Lose the ability to sit, walk, and eventually swallow
  • Experience increased vulnerability to infections — particularly pneumonia.

When your loved one enters late stage Alzheimer’s, one of the key decisions you’ll make is regarding the best late stage care options. Remember, the Long Island Alzheimer's Foundation (LIAF) is here for you to provide guidance, assistance, and support.

Memory Lane Club

We invite your loved one with late stage Alzheimer’s disease to take a trip down memory lane with the Memory Lane Club. This social model adult day program features engaging social activities, recreational activities, and a variety of cognitive stimulation.

Visit the Memory Lane Club to learn more or give us a call at (516) 767-6856.

In-Home Respite Care

In addition to the time your loved one spends at the Memory Lane Club, we offer two hours of in-home respite care every other week through the Helen and Sydney Jacoff Respite Program. This innovative program is offered for families in the Nassau County area.

Our highly-trained workers will arrive at your home to engage your loved one in different cognitive activities based on their abilities. During this time, you can take a much-needed break, visit with friends, or anything else you need to do.

For more information on the Helen and Sydney Jacoff Respite Program or to arrange in-home respite care, give us a call at (516) 767-6856 or complete our online contact form.

How Will Your Caregiver Role Change?

During the late stage of Alzheimer’s, your role of caregiver will shift to preserving your loved one’s dignity and quality of life. While they may lose the ability to freely express their needs and talk, most research suggests the core of your loved one continues to exist. As a result, you may be able to continue to connect with them throughout late stage Alzheimer’s.

Keep in mind, your loved one is experiencing the world primarily through senses. You can express your caring through taste, sound, touch, sight, and their sense of smell. You may find success:

  • Viewing older pictures together
  • Playing her or his favorite music
  • Reading books and passages that have a special meaning to them
  • Rubbing their favorite scented lotion onto the skin
  • Cooking their favorite food
  • Spending time outside on nice days
  • Brushing or combing their hair

Considering Long-Term Care for Late Stage Alzheimer’s Disease

Deciding to utilize long-term care for your loved one’s needs isn’t an easy decision. Even so, it’s often the best decision for many families facing Alzheimer’s disease challenges in the Nassau and Queens County area.

To help ease the decision, we encourage caregivers to have this conversation with their parent, spouse, sibling or loved one with Alzheimer’s while they’re in the early stage. By getting their input and feelings about long-term care options, you may be better equipped to make a decision.

Even if you desire to keep your loved one home, most people with late stage Alzheimer’s disease have needs exceeding what most caregivers are able to provide at home — even with additional assistance. It’s important to understand there are multiple ways of providing your loved one with the care they need.

If you’re not able to provide the type of around-the-clock care they need, you may be best suited to find this care outside of your home. Remember — the best decision centers on doing what’s best for your loved one. And if you decide to choose a long-term care facility, the Long Island Alzheimer’s Foundation is here to provide assistance and guidance throughout the process.

Caregiver Support Groups – You’re Not Alone 

Providing for a loved one in late stage Alzheimer’s can be challenging, emotionally trying, and physically demanding. However, you do not have to go through the journey alone. We invite you and strongly encourage you to join us and other caregivers like yourself in our Caregiver Support Groups.

Our Caregiver Support Groups are facilitated by our Master’s level, licensed social worker who’ll infuse a variety of tactics to help reduce stress, caregiver depression, and isolation. Most importantly, you’ll be surrounded by other caregivers who can share their experiences, strengths, and hopes.

Each support group is hosted in a caring and supportive environment where you’ll find validation for your feelings and experiences by others. The support groups create the opportunity for you to socialize and extend your own network of support. Our Caregiver Support Groups are customized by your relation to your loved one with Alzheimer’s:

  • Adult Children Caregiver Support Group meets from 1PM to 2PM on Mondays
  • Spousal Caregiver Support Group meets from 1PM to 2PM on Thursdays
  • Caregiver Support Group meets monthly on every 2nd Saturday from 10:15-11:15 am.

Visit our Caregiver Support Groups page to learn more or give us a call at (516) 767-6856.

Contact LIAF for Late Stage Alzheimer's Help

At LIAF, we bring 30 years of experience helping families facing Alzheimer’s challenges. Our innovative programming through the Memory Lane Club helps stimulate your loved one’s mind and enhance socialization while giving caregivers a significant amount of “free-time” back each week.

We also host professionally-facilitated Caregiver Support Groups offering you a safe forum to express your feelings without judgement and connect to other caregivers on a similar journey.

Our message is simple: regardless of what you’re going through — you are not alone. We will be with you along every step of the way. Contact LIAF today to learn more about any of our services. Give us a call at (516) 767-6856 or complete our online contact form.

Have you or a loved one been diagnosed with Alzheimer's Disease?